by Susie Newday (Israel) | Nov 20, 2013 | 2013, Cancer, Health, Israel, Susie Newday, World Motherhood
Neta sat down with World Mom contributor, Susie Newday in Israel to talk about living her life with metastatic breast cancer.
This is part three of our contributor and cancer nurse, Susie Newday’s, moving and in-depth interview on breast cancer with her close friend. Grab a cup of something warm, and come be a fly on the wall with us, as two friends discuss living with metastatic breast cancer. There is something for us all to learn. (Click to catch up and read Part I and Part II.)
Susie: Your diagnosis changed your life. How did it change your life in practical terms?
Neta: When I was first diagnosed, it almost didn’t change my life at all. I had very few side effects from the treatment, and I continued to work. It was a total of nine months with surgery in the middle of those months. I had chemo, surgery and radiation. I started the treatments from a place of strength. I think that, strengthwise, I’m a strong person. I was almost never sick. I had a body image of a healthy, strong person.
I was always athletic and strong. I never felt weak. And suddenly you change from the healthiest person in your mind to the sickest person, who is getting chemo that weakens you. And you get shots and blood and everything else that’s involved. I continued to work during that whole period.
The principal in my school said to me that she had never seen anything like this, someone going through such strong chemo who continues to function like this.
I would miss work for the day of treatment and the day after, and then I would work the next two weeks until the next treatment. Also during the six weeks of radiation, I would do it after work in the afternoon. The work kept me going. I would be very tired in the evening, but I continued to function more or less like normal. I worked a few less hours at work and managed to keep the house running more or less like normal. I did go to bed very early about 8 pm.
The only trauma was the hair loss. The kids took it very hard. They were very embarrassed for me to go around bald. All the kids, even the young ones, wanted me to wear some type of head covering. I had a wig.
I went to work with a wig, and whoever didn’t know about the cancer, didn’t realize. I was diagnosed over summer vacation, and I came back to work in September with a wig already. I didn’t hide it, but it took some people time to find out.
So, during the first bout of cancer I had a lot of energy, and I was lucky to have very few side effects.
S: Did you have nausea during your pregnancies? There seems to be a correlation between people who have nausea during pregnancy and nausea during chemo.
N: No I didn’t, and my doctor also said there is a correlation. I had very little nausea, if at all. As far as other side effects, I hated wearing the wig. It really itched me and was uncomfortable. The minute I was able to, I took it off and wore a head scarf.
S: Your trauma about the hair loss was because your kids took it hard, or was it something you yourself took hard?
N: It was also because of the kids and also because you don’t want anyone to know you are sick. I didn’t like the way I looked when I looked in the mirror, but I understood that it was something temporary, that it would grow back.
It was very hard for the kids. They didn’t want their friends to see me without a head covering. At home I didn’t wear a wig only a head scarf.
I only wore the wig to work and to special events. I think if it wasn’t for the kids asking me not to go without a head covering, I probably would have gone without anything.
S: When the cancer came back, how did you feel?
N: It was very hard. When it came back there were already metastases all over my bones. I had really bad back pain. I received radiation to my neck, but it didn’t help right away. It took time. In the beginning I had to wear a neck brace; initially, only for car rides; but then I had to wear it all the time. I was in terrible pain. For a few months I spent almost all day in bed, I couldn’t move. I could barely get up to go to the bathroom. It took a long time until I found the right pain medication regimen. So yes, things were different. I was in bed and everyone came to me.
S: How did you cope with such bad pain?
N: I remember I was in shock from the pain. I don’t know if I’m someone who doesn’t do the self-pity thing, but I do pity myself sometimes. The pain was so bad sometimes that I physically couldn’t do things, but I don’t remember having a feeling of being depressed.
Once again I summoned the energy. I had no choice. In my way of thinking, I had no choice. I have four children, and I can’t give up or take a time out from this world.
S: You did and do have a choice. You choose.
N: In my mindset, I have no choice. I have to cope, and I have for what to cope. I had to be strong because I have children and they need me, so I cope. My choice is to be here.
S: There is a lot of strength in knowing that you choose and that you are in the driver’s seat.
N: Even if it is a choice, it’s an automatic choice for me. I don’t stop to think, what am I going to do now?
S: That’s your mindset because your family and your kids are important to you.
N: I know that when some mothers are sick, thinking about the children and what will be with them can be depressing. For me, thinking about my children gives me a lot of strength because I want to be there for them. I want them to see that I can cope and that I can be there with them. Even when I was in bed all the time, the kids came to lay in bed next to me, and I read them books.
The kids are very important to me and they give me a lot of strength. They are what gives me the most strength. I love a lot of people in this world, friends and parents and family, but no one comes close to my kids in regards to their meaning in my life, in regards to my love for them, in regards to my commitment to them. The kids are just different. I choose to be there for them because I want what is best for them.
Because they give me so much strength, even when I was stuck lying in bed and not moving, I didn’t sink into a depression. I knew I had to fight. Maybe I am just a doing, practical type of person. I say to myself, this is what I have to do now, and these are my priorities and that’s what I do. I do think about things. I do understand the significance. I choose my priorities and what’s most important, what’s worth fighting for and what I will invest my energy in. What’s less important will wait.
That’s something that has guided me this whole period. The strength is finding the things that give you strength, to understand what they are, to stick with them. If for me what’s important is that my children have a normal childhood without major traumas (as much as I am able to control), if that’s what’s close to my heart, I will fight for it. If it means that in order for that to happen that I have to do something like asking for help even if asking for help is not easy for me, I will do it.
I remember in the beginning how hard it was for me to ask for help. You find yourself in a place of weakness and no one wants to feel weak, and pathetic and in need of help. It’s a lot easier to be the one giving help. Once upon a time I didn’t understand how hard it is to ask for and receive help. Healthy people generally don’t ask for help. I have been helped so much that I feel like I want to give back to people what I can. If I hear someone needs something that I can help with, I try to help.
Even though receiving help is hard, when the other choice is not receiving the help and having my children hurt by that I take the help because I need my children to have the most normal life that they can. What keeps me going is trying to figure out how to create the most normal surroundings for my children. I’ve done everything I can to make things easier on my children. My community is amazing. We’ve had unbelievable generous help from our friends and community, and I’m not sure that is something that can be found everywhere. People cooked for us for months, and even now if I need help taking the kids anywhere or to run errands they help me. Now that my husband is sick as well, when he doesn’t feel well we need more help as well because all of a sudden everything falls on me.
S: Have you thought about hiring someone to help you?
N: I have thought about it. We had someone for a while but it’s not easy bringing someone else into the home. I have been trying to refrain from that. If I see that I have no choice, that’s what I’ll do.
S: Do you find that it’s taking a physical toll on you doing it all by yourself?
N: I’m tired all the time but that’s not something new. Actually when I know that I have to rise to the challenge for a few days, I surprise myself and have found the strength. I’m tired but I manage and I feel good that I was able to manage. It also keeps the stability of the dynamics in the house. I choose to function. I’m trying to keep things as normal as possible. It doesn’t do good when people are coming in and out all the time. It hurts the household routine.
If I need to bring in help I will. The kids also understand that if I bring someone in to help that means that my husband and I are not functioning anymore and it stresses them out. They ask “What? You can’t do it by yourself?”
Tune in soon for Part IV of this IV part “World Mom to World Mom” series on living with metastatic breast cancer.
Cancer can happen to everyone. Listen to your body, treat it well and educate yourself about cancer symptoms. Learn not just about breast cancer symptoms (which are varied) but also the symptoms of ovarian cancer, GI cancer, lung cancer, pancreatic cancer and all the other cancers out there. Ask your parents about your family medical history. Do the recommended screening tests that are available to you because early detection of any cancer makes a hell of a difference.
Most of all enjoy every minute of your life because there are people out there who are dying for more time.
(For the full series: click here to read Part I, click here to read Part II, click here to read Part III and click here to read Part IV.)
This is an original post by World Moms Blog Africa & Middle East Regional Editor, Susie Newday in Israel.
Photo credit to the author.
Susie Newday is a happily-married American-born Israeli mother of five. She is an oncology nurse, blogger and avid amateur photographer.
Most importantly, Susie is a happily married mother of five amazing kids from age 8-24 and soon to be a mother in law. (Which also makes her a chef, maid, tutor, chauffeur, launderer...) Susie's blog, New Day, New Lesson, is her attempt to help others and herself view the lessons life hands all of us in a positive light. She will also be the first to admit that blogging is great free therapy as well. Susie's hope for the world? Increasing kindness, tolerance and love.
You can also follow her Facebook page New Day, New Lesson where she posts her unique photos with quotes as well as gift ideas.
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by Susie Newday (Israel) | Nov 16, 2013 | 2013, Cancer, Health, Israel, Susie Newday, World Motherhood
Neta sat down with World Mom contributor, Susie Newday in Israel to talk about living her life with metastasis breast cancer.
This is part two of our contributor and cancer nurse, Susie Newday’s, moving and in depth interview on breast cancer with her close friend. Grab a cup of something warm, and come be a fly on the wall with us, as two friends discuss living with metastatic breast cancer. There is something for us all to learn. (Click to catch up and read Part I, first.)
Susie: You know what I remember? I remember before I worked in oncology, when you were diagnosed for the first time. You were waiting for your scan results to see whether there was any metastases and you said to me, “If I have metastasis, my life is over.” When you were diagnosed with the recurrence was that the same feeling you had?
Neta: Yes, that was my feeling. I said to myself, I’m screwed. With metastasis you don’t recover. You get another year or two.
S: Or maybe longer.
N: I have to say that I have a hard time believing that. I don’t really see that in the cards.
S: I wish you many more years.
N: I wish. And I thank you very much, and I hope I do. I’m not saying I want to die, I don’t. I’ll be happy to be surprised for the good but the feeling is that this is the end.
S: You walk around with the feeling everyday?
N: Now it’s less. Since I lived through the setback I had with the bleeding in my brain, and everyone told me that I’m a medical miracle, I now say to myself that maybe there are miracles out there.
I am more open to the possibility that maybe there will be a miracle here, something I refused to believe beforehand when my cancer recurred.
S: Tell me what happened with your setback and the hospitalization.
N: When I was rediagnosed, I was receiving Aredia to strengthen my bones and a biological treatment that was part of a clinical trial. I went back to work. About two or three months after that I began having severe weakness. My hemoglobin kept going down and they decided to hospitalize me. My oncologist told me that the cancer has reached my bone marrow. I was hospitalized in the regular medical ward for a week and a half until space opened up in the oncology ward and then they moved me. I received blood transfusions and chemotherapy.
A day or two after I was moved, I started having confusion, and then I couldn’t see. For about 5 days I had what seemed like a gray veil over my eyes. I don’t remember much but they told me I was really confused, and they had to appoint a legal guardian to make my medical decisions. To do that I needed an interview with the psychiatrist. He asked me a lot of questions which I don’t remember,
but I do remember that he asked me how old my children were and I couldn’t tell him. I knew their names but not their ages.
My husband brought the kids to visit me, but afterwards he told me that it was a difficult decision whether or not to bring them because I couldn’t see, and they didn’t want the kids to get scared. He had consulted with the psychologist who said to bring them because it’s better for them to see their mother even if she is confused and doesn’t see than not to see her.
It was 5 very difficult days. They ran all kinds of tests from eye tests to an MRI. I remember being very afraid before the MRI. I remember them saying it’s a very important test to see what’s going on. Inside the machine everything was rotating, and there was a horrible noise. I remember it being very traumatic, also the MRI test itself and also the fact that I knew it was a very important test, and I didn’t know what they were looking for. After the fact, I now know they were looking for metastases in the brain. They didn’t find any, it was only a brain bleed, and then they said the situation is better than they thought.
I don’t remember everything from those days. I remember people coming to visit. I recognized the people who came.
Later on, I found out that my husband already prepared the older girls a bit to expect the worse. They said psalms, and no one really thought I was going to recover because my medical state was not good. Then on the fifth day I woke up in the morning, my mother came into the room, and I was able to see her.
The doctors came, and they did tests. My eyesight came back, but slowly. Even now I can see perfectly from far but my vision from close is still impaired and interferes with reading. But at least I see the world, I see things. I don’t need help walking.
Since that incident I say to myself maybe there is some kind of miracle going on here, maybe there is some kind of divine intervention. In the hospital everyone was saying they had never seen someone recuperate like I did with their eyesight returning. Maybe it had something to do with my willpower. After my husband was diagnosed, I realized why it was that I pulled through, why I’m still here. I’m here to organize things and take care of my family. It is much harder when both parents are ill. I couldn’t “go” and leave my husband here alone to also fight his disease and raise the children because it is impossible to do. Apparently someone up above realized that I’m still needed here. That’s the answer I give myself. No one has said that to me, I just feel it. No one has answers but after my husband was diagnosed with cancer I just understood why I am still here.
S: When was your husband diagnosed?
N: January 2013. He was admitted with a bowel obstruction and then was diagnosed with Metastatic Colon Cancer. He was diagnosed about 2-3 months after my prolonged hospitalization, and I hadn’t really recuperated yet. I had slowly been getting better. I would be hospitalized for a week or so and then released and then hospitalized again for a week. It was a big shock having another person in the family sick. When he wasn’t feeling well and needed to go to the Emergency Room I still wasn’t feeling great and I couldn’t drive. His brother came and picked him up.
S: What was going through your head when your husband was diagnosed?
N: That someone up above is crazy. It’s not just that I’m sick, and now he’s sick. It’s the fact that both of us are in a situation where the doctors are not optimistic. It’s not a situation where you can say to yourself that I will definitely beat this. It could be 1, 2 or 3 years. No one has any idea how long you have for sure. I said to myself and to God, why him? * He is such a good person. For sure he hasn’t sinned. Maybe I sinned unwittingly but him? With my husband it seemed like a different level, it was like he doesn’t deserve this. He is such a good person.
S: And you deserve it?
N: No. But HE is really a good person. He’s a better person than me. He has a good heart, he doesn’t hurt people. * I just couldn’t reconcile how it was possible that he could be sick because he didn’t deserve it because he is such a good person. You start saying to yourself that God went crazy. Is there no justice in the world? Two young parents with 4 children are both now sick. Something went wrong. Either God is putting us through some great trial or I don’t know what. It’s not fair. I felt very strongly that it was just not fair that he was sick too, it was enough that I was sick.
*(I went to get some tissues at this point for her, which were easy to find because as she said there are lots of tissues in her house.)
S: I think that women and especially mothers don’t see ourselves the way other people see us. We are very generous towards other but we don’t cut ourselves any slack. I’m flabbergasted how you’re talking about how your husband doesn’t deserve this to happen to him and you do? (We both started laughing at that point)
N: He is the kind of person who if you ask directions on how to get somewhere, even if it’s out-of-the-way he will take you there. I would try to explain, I would not take anyone all the way there.
S: What good things do you see in yourself, what things do you do that are good and that are unique to you?
N: I have more sensitivity to people. My husband doesn’t see certain things that I’m more intuitive about, also in life and also in work. Part of my job was to be sensitive to kids. I have more sensitivity to my surroundings which my husband might sometimes miss because he just doesn’t see it. I can be a good friend. As far as the kids, I’m more involved, I am with them more. I never said I don’t do good things. My husband is just good.
S: Were you always as involved with your kids or is it more since you have been sick?
N: It was always very important for me to be a mother, to be with the kids. The thing that stressed me out the most when I got sick was the kids, what’s going to be with the kids. I still struggle with that. I was always with them. After my births I took extended maternity leave. I saw motherhood as a very important role. I always had that, it’s not something that started now.
(For the full series: click here to read Part I, click here to read Part II, click here to read Part III and click here to read Part IV.)
This is an original post to World Moms Blog by our Africa and Middle East Editor, Susie Newday, in Israel.
Photo credit to the author.
Susie Newday is a happily-married American-born Israeli mother of five. She is an oncology nurse, blogger and avid amateur photographer.
Most importantly, Susie is a happily married mother of five amazing kids from age 8-24 and soon to be a mother in law. (Which also makes her a chef, maid, tutor, chauffeur, launderer...) Susie's blog, New Day, New Lesson, is her attempt to help others and herself view the lessons life hands all of us in a positive light. She will also be the first to admit that blogging is great free therapy as well. Susie's hope for the world? Increasing kindness, tolerance and love.
You can also follow her Facebook page New Day, New Lesson where she posts her unique photos with quotes as well as gift ideas.
More Posts - Website
Follow Me:
by Ewa Samples | Jul 12, 2013 | 2013, Babies, Communication, Domesticity, Family, Husband, Kids, Life Balance, Life Lesson, Maternal Health, Motherhood, Polish Mom Photographer, Relationships, World Motherhood, Younger Children
A few months ago, while waiting in our laundry room, I saw some magazines left on the table. I picked one of them and started flipping through. Being in a not so very happy period of my life, one article drew my attention: Give yourself a happiness makeover. Beneath the title: Longevity expert, Dan Buettner traveled the globe to discover what makes people happiest. This caught my attention more than the title itself.
Essentially it was an article about how to improve your happiness in 10 steps. I normally don’t read that crap but then I thought: what the heck, it won’t hurt me.
So here are a few steps listed in this article:
- “Make the most of your mornings.”: CHECKED. Two kids (one newborn), three if counting husband, four if counting a recent (at that time) addition of a high-maintenance puppy to our family. I didn’t even remember my mornings…I didn’t even remember my name!
- “Stop spending; start saving.”: Don’t have much to spend or save, I thought. CHECKED.
- “Get a daily dose of friends.”: Well, I have 303 friends on Facebook…CHECKED, right?
There was even advice for those who don’t go to church: “Start going.” Duh!
Anyway, the list went on, and then, there it was, the golden advice: “Gain Peace With a Pooch.” Now it got more interesting! (more…)
Ewa was born, and raised in Poland. She graduated University with a master's degree in Mass-Media Education. This daring mom hitchhiked from Berlin, Germany through Switzerland and France to Barcelona, Spain and back again!
She left Poland to become an Au Pair in California and looked after twins of gay parents for almost 2 years. There, she met her future husband through Couch Surfing, an international non-profit network that connects travelers with locals.
Today she enjoys her life one picture at a time. She runs a photography business in sunny California and document her daughters life one picture at a time.
You can find this artistic mom on her blog, Ewa Samples Photography, on Twitter @EwaSamples or on Facebook!
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by Mama Mzungu (Kenya) | Jun 12, 2012 | Culture, Kenya, Living Abroad, Motherhood, Multicultural, World Motherhood
Before moving to Kenya, along with updating our vaccines and strategically packing our belongings to fit our meager bag allowance, one of the things I prepared myself for was the possibility of having house help. Both my husband and I would be working and we’d be living in a rural area, so we’d need someone to help look after our son. And unless I wanted to spend 20 hours a week washing our clothes by hand, we’d need to hire some house help. I’m not exaggerating when I say I hated the idea.
I consider myself hardworking and self-reliant, so I hated the idea of someone doing something for me that I could do myself. I’m a private person, so I hated the idea of someone observing, maybe judging, the interior of our lives. I’m a natural people pleaser, so I hate the idea of being someone’s boss in my own home.
More than anything I hated the prospect of putting someone in, what I thought, was a subservient position and, if I’m being honest with myself, bringing someone in who would be a continual reminder of the uncomfortable inequities of the world. Someone who could see what we spent on things like groceries and petrol and compare that unfavorably with her monthly salary.
And coming from the US, there was probably something in the recesses of my subconscious that was reflexively uncomfortable with being a light skinned person hiring a darker skinned person to clean my unmentionables. It’s a relationship loaded with historic and cultural baggage. (more…)
Originally from Chicago, Kim has dabbled in world travel through her 20s and is finally realizing her dream of living and working in Western Kenya with her husband and two small boys, Caleb and Emmet. She writes about tension of looking at what the family left in the US and feeling like they live a relatively simple life, and then looking at their neighbors and feeling embarrassed by their riches. She writes about clumsily navigating the inevitable cultural differences and learning every day that we share more than we don’t. Come visit her at Mama Mzungu.
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by Frelle (USA) | May 22, 2012 | Friendship, Husband, Motherhood, USA, World Motherhood
In the last few years, I’ve had several friendships end. Some of them have been due to difference of opinion about my separation and divorce, and others have just been a gradual drifting apart. Memories of them might cause me to feel a sharp sting, or even bring tears to my eyes. I had never cried over the loss of a friendship with a woman until last May.
I had been friends with Joy for 8 years, seeing her through her divorce, taking her kids for weekends at a time while she went away for sanity time, or on modeling jobs to help support her kids. We were like sisters. We were always at each other’s houses, helping each other, secure in the fact that we had each other’s back any time, anywhere. (more…)
Jenna grew up in the midwestern US, active in music and her church community from a young age. She developed a love of all things literary thanks to her mom, and a love of all things science fiction thanks to her dad. She left the midwest in her early twenties and has lived in the south ever since.
On her blog, she tries to write words that make a difference to people. Long before she attended college to major in Special Ed and Psychology, she became an advocate for special needs and invisible disabilities. She's always been perceptive of and encouraging to those who struggle to fit in. Having been through several dark seasons in her own life, she's found empowerment in being transparent and vulnerable about her emotions, making deep and lasting friendships, and finding courage to write from her heart. Her biggest wish is to raise her kids to be compassionate people who love well.
She's been online since 1993, with a total of 19 years of social media exposure. Having friends she doesn't know in real life has been normal for her since her junior year in college, and she's grateful every day for the ways technology helps her stay in touch with friends from all over the world.
Jenna lives in a suburb of Raleigh, North Carolina, and is a freelance writer and a stay at home single mom to 3 girls and a boy. She blogs at MadeMoreBeautiful.comMadeMoreBeautiful.com.
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