INDONESIA: Our Hearing Loss Journey

INDONESIA: Our Hearing Loss Journey

A year ago, when our daughter was nearly 8 years old, we found out that she has profound hearing loss in her left ear. We had been concerned about her hearing since she was in preschool. Her class teacher assuaged our worries and subsequent teachers never raised any issues. But still, we wondered.

We couldn’t get concrete answers

A few years later we arranged for an audiology test at our health clinic in Jakarta and were told that her hearing was fine, in fact, her left ear was “better” than her right ear. Although I should have been happy when the doctor delivered the test result, I felt skeptical and couldn’t shake the feeling that something wasn’t right.

We had to wait another year until our next US visit to schedule a more thorough assessment. This time it was immediately clear that there was a problem. The audiologist grew increasingly alarmed as he ran through the evaluation process, but my daughter remained relaxed. I explained that the tests showed us that her left ear wasn’t working. “Yeah, I know that already”, she said calmly, “I’ve been telling you that I can’t hear.”

“I know, sweetie. I know.” My heart broke a little.

There were many emotions that day.

Relief….at having our concerns confirmed and finally knowing what was wrong
Guilt…because it took so long to diagnose her hearing loss
Frustration…that it hadn’t been picked up at school or in the previous test
Amazement…when considering how well she had coped until now
Worry…about the challenges she will face and the unknown path ahead
Pride…in knowing that if anyone can manage this, she can.

The next day we met with an ENT specialist who suggested that we consider a cochlear implant (not typically recommended for single-sided hearing loss). It was a lot to take in and we wanted more time to consider the full range of options. We returned to Jakarta shortly after and followed up some months later in Singapore, where the doctor there told us that if it were his daughter, he wouldn’t do anything.

Between the two doctors, we had more questions than answers and it felt daunting and confusing to be navigating this brand new path with such divergent advice, without any kind of network or supportive community, thousands of miles from our home health care system.

Getting some Clarity

One year on, we are much clearer about things. We sought a third ENT opinion on our last US visit, which confirmed our desire to pursue a hearing aid option that we hope to get soon.

Unfortunately, such devices are more expensive in this part of the world and even with insurance the out of pocket cost is significant. When I found out about this, I immediately started calling around to compare prices – ringing hearing clinics in Thailand, Singapore and even Australia. It seemed absurd in a way – I would never fly to another US state to buy anything – but with limited options here, this type of “medical tourism” is common.

We have also worked with our daughter’s school and teachers to develop and implement classroom accommodations and communication strategies to support her learning and self-advocacy. Catering for this type of individual need is somewhat new for the school, so it has been a learning process for all involved.

Getting by with no support system

Fortunately I now know a few other school families who have children with hearing issues, which is a big help, but I still feel like I’m ambling along in the dark a lot of the time. It is this feeling of isolation which has been the hardest for me.

Sometimes I think that things would be so much more straightforward if we were based in the US and could easily connect with other families, access resources and services, and follow a more predictable path. The logistics of being an expatriate family meant that our daughter’s hearing loss went undiagnosed for longer than it might have otherwise. I still feel bad about this, but I also feel good knowing that our gut instincts were correct and we’re now on the right track.

We don’t know why our daughter lost her hearing. She was a premature twin with low birth weight, which could be a contributing factor – but really, we’ll never know.

The main thing for us now is to protect and maximize the hearing she does have and provide as much support as we can in the journey ahead. She has already selected the color of her new hearing aids (“champagne”) and can’t wait to show us how responsible she is.

If anyone can do it, she can.

As an expat mom do you feel that there are health issues with your kids that might have been avoided or that you could have dealt with better back home?

This is an original post by World Mom Shaula Bellour in Jakarta, Indonesia

The image used in this post is credited to Jaya Ramchandani. It holds a Flickr: Creative Commons attribution license.

Shaula Bellour (Indonesia)

Shaula Bellour grew up in Redmond, Washington. She now lives in Jakarta, Indonesia with her British husband and 9-year old boy/girl twins. She has degrees in International Relations and Gender and Development and works as a consultant for the UN and non-governmental organizations. Shaula has lived and worked in the US, France, England, Kenya, Eritrea, Kosovo, Lebanon and Timor-Leste. She began writing for World Moms Network in 2010. She plans to eventually find her way back to the Pacific Northwest one day, but until then she’s enjoying living in the big wide world with her family.

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Did you catch Jennifer Burden’s post on @BabyCenter?

Did you catch Jennifer Burden’s post on @BabyCenter?

Jennifer Burden, Founder & CEO of World Moms Network

Jennifer Burden, Founder & CEO of World Moms Network

As part of World Moms Blog’s collaboration with BabyCenter’s Mission Motherhood®, our World Moms are writing posts on maternal health around the world. In today’s post, Jennifer Burden writes about Jacaranda Health’s impact on maternal health in Kenya.

“Whether you are thinking about getting pregnant, currently pregnant, or a seasoned birther, there is one thing that we can all agree about avoiding. Lines in the maternity ward!! Big ones. HUGE. Because, hey, when a mother’s gotta birth, a mother’s gotta birth, right? Get out of our way, we’re coming through!!!

Long lines are the reality for moms who seek to give birth in public clinics in Kenya. Add lack of good procedures to prevent infection, being disrespected by health workers, rushed care, and overlooked emergencies to the mix; and Kenyan women report having bad experiences at public clinics. Giving birth can be frightening and dangerous for moms here. The Kenyan government is committed to help; however, there is little oversight or training to make the improvements needed…”

Read the full post, Maternal health worth traveling miles for in Kenya, over at BabyCenter’s Mission Motherhood®!

World Moms Blog

World Moms Blog is an award winning website which writes from over 30 countries on the topics of motherhood, culture, human rights and social good. Over 70 international contributors share their stories from around the globe, bonded by the common thread of motherhood and wanting a better world for their children. World Moms Blog was listed by Forbes Woman as one of the "Best 100 Websites for Women 2012 & 2013" and also called a "must read" by the NY Times Motherlode in 2013. Our Senior Editor in India, Purnima Ramakrishnan, was awarded the BlogHer International Activist Award in 2013.

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Did you catch Purnima Ramakrishnan’s latest post on @BabyCenter?

Did you catch Purnima Ramakrishnan’s latest post on @BabyCenter?

Purnima Ramakrishnan 600

As part of World Moms Blog’s collaboration with BabyCenter’s Mission Motherhood®, our World Moms are writing posts on maternal health around the world. In today’s post, Purnima Ramakrishnan interviewed a doctor in her local hospital, Dr. Vijila Christian, who is the Senior Anti Retroviral Therapy Medical Officer at the Government Hospital of Thoracic Medicine in Tambaram, Chennai. Dr. Christian is dedicated to see that more babies are born HIV-free in India.

“’We cannot disclose if a client is HIV positive to their partner without consent from the client. This creates problems because when we cannot disclose, we cannot do adequate counselling as a couple.’

In fact, Dr. Christian once had a client who kept both her pregnancy status and HIV status a secret from her partner until her third trimester. She was a very thin built woman, so she did not begin showing until she was 8 months along.

‘So what can I do with such clients?” she asks with a shake of her head.'”

Read the full post, Counseling mothers with HIV in India: The dawn of hope, over at BabyCenter’s Mission Motherhood®!

World Moms Blog

World Moms Blog is an award winning website which writes from over 30 countries on the topics of motherhood, culture, human rights and social good. Over 70 international contributors share their stories from around the globe, bonded by the common thread of motherhood and wanting a better world for their children. World Moms Blog was listed by Forbes Woman as one of the "Best 100 Websites for Women 2012 & 2013" and also called a "must read" by the NY Times Motherlode in 2013. Our Senior Editor in India, Purnima Ramakrishnan, was awarded the BlogHer International Activist Award in 2013.

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ISRAEL: Goodbye, Shimon Peres

shimon-peres

It’s funny how the loss of someone you don’t personally know can hit you so hard. Since Shimon Peres passed away I’ve been spontaneously bursting into tears. He was the grandfather of the Israeli nation and the last of its founding fathers. He was an inspiration and his loss leaves a huge void. I wrote on my blog in response:

“I got close. I was due to meet him at the Israeli Presidential Conference three years ago on his 90th birthday. Sadly the plans for him meeting the bloggers covering the conference changed and I only got to see him from afar when he was part of a panel with Sharon Stone.

Now Peres is gone and the chance to meet a man I admired will never be. I’m sitting here writing this as I watch his funeral ceremony on television and try to stop the tears from flowing.

I’m saddened because Israel and the Jewish people have lost a true visionary, a man who loved his country and his people so deeply that no job in its service was beneath him. He was quoted as saying “When you do something from love it doesn’t matter what the job is.” This is a man who served Israel is so many different capacities, as minister of defense, minister of foreign affairs, minister of finance, minister of transportation, prime minister and president…”

Please head over to New Day New Lesson to read my full post, “Israel’s tomorrow is now ours to worry about — RIP Shimon Peres.

Writing has always been a way for me to work through my feelings, so as I was watching the funeral I wrote this tribute to a great man who left us before his time. He still had so much more to give the world. Now it’s up to us.

This is an original post to World Moms Network by World Mom, Susie Newday in Israel. 

Photo credit to Susie Newday.

Susie Newday (Israel)

Susie Newday is a happily-married American-born Israeli mother of five. She is an oncology nurse, blogger and avid amateur photographer. Most importantly, Susie is a happily married mother of five amazing kids from age 8-24 and soon to be a mother in law. (Which also makes her a chef, maid, tutor, chauffeur, launderer...) Susie's blog, New Day, New Lesson, is her attempt to help others and herself view the lessons life hands all of us in a positive light. She will also be the first to admit that blogging is great free therapy as well. Susie's hope for the world? Increasing kindness, tolerance and love. You can also follow her Facebook page New Day, New Lesson where she posts her unique photos with quotes as well as gift ideas.

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EGYPT: Choosing our children’s career path

career-path

One of the most challenging decisions faced by families in my country is choosing a career path and a college for their child. The journey starts during the second year of high school, when students choose between a scientific or literary curriculum. Later, in their final year, pupils who chose the scientific section must choose between mathematics-focused or biology-focused studies. Both children and parents struggle for support during this journey – and none is given.  Most importantly, children’s strengths are rarely assessed or taken into account when considering the different choices. But do we as parents have the right to choose our children’s career path?

Many factors and beliefs affect this choice. Some career paths are more prestigious than others. Some colleges are suitable for males but not females, and vice versa. Graduates of some colleges get hired immediately after graduation while others are less likely to find jobs quickly. Some families believe that children must follow their parents’ career path of their parents, or realize their parents’ own dreams. Most importantly, if the child does not get high enough scores they will not be accepted to their college of choice.

I admit that at this young age, most children are not mature enough to make such choices on their own. Even if they are interested in a certain field, most children are still unable to assess their own strengths and capabilities as they relate to the real world. As a result, many students simply comply with their parents wishes.

During a school seminar I once conducted, I met a girl whose mother forced her to select the literary course because she believed that scientific studies required too much work. The girl loved science, but her mother discouraged her from following her passion. By the end of the year, the girl was miserable and the mother regretted her decision. Another student’s father wanted her to join the pharmacy college, although the girl wanted to study arts. Many students shared their stories, lamenting that their parents were forcing them to join specific career paths.

I remember my own experience many years ago when I graduated from high school and wanted to join the faculty of engineering to study computer science, because I loved mathematics. My father wanted me to go to the faculty of commerce because he, himself, was a banker. I, however, insisted, and made my own choice.  By the end of my third year of college I knew this course of study was not for me, but unfortunately I couldn’t make a change. I did not know what else to do and no one would allow me to follow a different course. On the other hand, I never regretted because the choice was my own.

Just six years ago I decided to shift my career from software engineering to life coaching. All my colleagues and family were against me. They still consider me foolish to leave a prestigious position for a complete change and an unknown career. I believe in what I am doing, I believe in its power, and what difference it made in my life. Sometimes I wish I had done it earlier.

Choosing a career path that provides fulfillment and satisfaction  to our children and suits their capabilities and strengths is the most important choice in their lives. It is true that making a career shift is possible now, but not all people are courageous enough to take such a risk. In addition, why should they waste their time and energy on an inappropriate path while we can help them avoid it? With support from specialists, we can better understand our children’s strengths and preferred way of learning, and we can allow them to try different activities and fields to discover their real passion. Most importantly, we should not impose our own choices on our children. They must make their own decision, with support and guidance from us as parents.  With our help, they can learn how to make the best choice for themselves.

Do you have any experiences with helping your children to choose a career path? Are assessment tools used in your country to help the students make the right choice? Would you impose a certain field of study on your child just because you believe it suits them even if they do not like it?

This is an original post for World Moms Network by Nihad from Alexandria, Egypt. Nihad blogs at  Aurora Beams Life Coaching.

Image via Stuart Miles, FreeDigitalPhotos.net

Nihad

Nihad is an Egyptian woman, who was born and has lived her whole life in Alexandria, Egypt. She says, “People who visited this city know how charming and beautiful this city is. Although I love every city in Egypt, Alexandria is the one I love the most.” She is a software engineer and has worked in the field for more than twenty years. But recently she quit her job, got a coaching certificate and she is now a self employed life and career coach. She says, “I believe that women in this era face big challenges and they are taking huge responsibilities. That's why I have chosen my niche -- women looking for happiness and satisfaction. I help and support them in making whatever change (career change, life change, behavior change, belief change…) they want to bring more satisfaction and happiness in their lives.” Nihad is a mother of two lovely boys, 15 and 9 years old. She states, “They are the most precious gifts I have ever had. I madly love them, and I consider them the main source of happiness in my life.” Our inspiring mother in Egypt can also be found at Aurora Beams Life Coaching.

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BELGIUM: Coucou, One Mom’s Battle with Depression

BELGIUM: Coucou, One Mom’s Battle with Depression

black-flagsToday is my birthday but I don’t feel the need to celebrate.

It’s not about getting older. I don’t mind adding years to my curriculum. The years and some grey hairs might actually help to finally getting profiled as a mature scientist.

It’s about celebrating life. My life. I don’t feel like I should celebrate it while I’m going under in yet another episode of depression.

It has been two years since I was diagnosed with severe depression. I guess my reluctance to celebrate my birthday means I still haven’t come to terms with it. I’ve had therapy. I’m taking my meds. And still depression lurks around the corner. I loathe it. Depression makes me loath depression. At least thàt part makes sense.

But then there’s my children. They are my everything. They are the reason I’m holding on while giving up. I don’t struggle to take care of myself for me. I take care of myself for them. Depression or not, I’m still their mother. And I feel incredibly guilty about that.

I often feel I should never have decided to have children, let alone adopt a child. I worry about not providing a stabile environment for them to grow up in. I worry about transfering my lability to them. I worry about pushing them away from me when I’m over and out. I worry a lot.

In turn, they both worry about me.

My 9-year old son is the most worried and gets really affectionate when he sees I’m going through yet another rough patch. He doesn’t like to talk about it, but he does want to understand. My 7-year old daughter on the other hand, likes to tell everyone about her mom who is a bit coucou. She likes to talk about depression a lot.

So I talked to them about depression. I referred to it as the black balloon, and added some details as they grew older. They know some wires in my head are not connected as they should. That information is not coming in the right way. That I need to rest a lot to heal. That I’m in fact, yes, a bit coucou.

I also told them that it is still OK to laugh at me when I’m so utterly confused that I lose at every board game. That it’s all right and maybe even fun to instruct me on how to cook diner. And most importantly that I still love them with every inch of my coucou head.

Even on my birthday.

How do you feel about ‘combining’ mental illness with motherhood? Do you talk about mental illness with your children?

This is an original post for World Moms Network by K10K in Belgium. The picture is credited to the author.

Katinka

If you ask her about her daytime job, Katinka will tell you all about the challenge of studying the fate of radioactive substances in the deep subsurface. Her most demanding and rewarding job however is raising four kids together with five other parents, each with their own quirks, wishes and (dis)abilities. As parenting and especially co-parenting involves a lot of letting go, she finds herself singing the theme song to Frozen over and over again, even when the kids are not even there...

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