by Tinne from Tantrums and Tomatoes | Jul 15, 2013 | Belgium, Education, Government, Health, Special Needs, Tantrum and Tomatoes, Uncategorized
It is a running gag that we Belgians like to make things complicated. This shows itself best in the Moloch which calls itself ‘Government’.
Government – like all of its kind – has a thing for paperwork. It starts even before you are born, when your mother and father are requested to fill in form after form to guarantee your basic rights and to prove that yes you are about to enter the world.
And it goes on and on and on. Papers which need to be filled out announcing your actual birth, your name, gender, weight, etc… Then when you are a few weeks old, your mother will receive an order to have you weighed, measured and to have a friendly chat with a childcare specialist about how you – little pooping nugget – are doing. (Don’t get me wrong, I greatly appreciate this service: these checkups – and accompanying vaccinations – are free of charge, and they often aid in detecting health issues really early.)
When you enter school the whole administrative shebang is transferred to another institution, which will now not only monitor your growth, weight gain and fine motor skills but also your learning process and general scholastic development. And, of course, there is paper work to be filled out…
So this is how I found myself filling out a five–page questionnaire on a rainy night in May in preparation of our eldest’s first annual checkup. Most questions were simple and straightforward : “Do either of the parents wear glasses?” (Yes, both), “Any hereditary diseases, mental illnesses,…” (None), “Primary language spoken at home?” (Dutch), “Any serious illnesses as an baby/infant?” (No).
But there was one question which gave made me pause : “Was either of the parents treated for a learning disability as a child/adult? If yes, please specify which one.”
Well, yes, actually. I was.
When I was about seven or eight years old I was diagnosed with the type of Attention Deficit Disorder, now called ADHD–I. Later they threw in some dyscalculia for good measure. While I never took any medication, I did receive treatment well into my teenage years.
Those were very difficult times, mainly because when I was diagnosed, the whole ADHD–spectrum was relatively unknown. Most people – teachers, close family members and other – scoffed when ADHD or ADD was mentioned.
Many called it an imaginary condition and would tell me that I was making things up, that I was just “not that bright”, “plain stupid”, “not trying hard enough” or – my personal favourite – “a lazy good for nothing pest, who would never get a degree and whose only career option was cleaning toilets”.
I vividly remember how my mother and I were asked to come to the principal’s office one day during my first year of high school, so we could discuss my poor results and lack of attention during class. We arrived carrying a thick file full of test results, reports, statements,… only for the principal to refuse even to look at the file and tell my mother that “it was about time that she accepted her daughter was not as intelligent as she was and that she should not waste peoples time by insisting I remained in a normal classroom.”
Needless to say, my mom was a wee bit pissed off and the discussion which followed can best be described as a fight between a lion with anger issues and a crazy, rabid baboon on steroids.
It got better when I changed schools the next year. It got better when I got older, because I got a better view on the what, the why and the how. It got better because I developed coping skills. It got better because the therapy actually worked and somehow my brain got whipped into some kind of shape. As we now know there is no “curing” ADHD. I still get distracted easily and rely on noise cancellation headphones or classical music to get me through a bad day.
After filling in the questionnaire I catch myself looking at my children all too often, and playing the “What if” – song in my head.
Because what if – along with the sensitive skin (sorry about that one, by the way, kids) and the shape of their eyes – I gave my kids those parts of me. What if, they, too, will have to fight a lifelong battle?
I know times are different. We are lucky to live in a part of the world where education is a basic right, not a privilege and not something for which we – women – have to fight. I know there is a better understanding, new developments in treatment and more acceptance regarding learning disabilities as opposed to when I was a kid. I know – think, hope, … I will probably be more prepared in dealing with one or both of my children being diagnosed with a learning disability than my own mother, who was basically left in the middle of the jungle with a broken compass as her only tool to help her fight a way out, if only because I’m aware of the fact that this situation may arise and have lived it, am in still living it, coping with it.
But still…
What if… ?
How are people dealing with the whole learning disability spectrum in your neck of the woods? If you are a “former special needs child turned adult” how would you deal with this situation?
This is an original post for World Moms Blog by Tinne of Tantrums and Tomatoes.
Photo credit to the author.
Born in Belgium on the fourth of July in a time before the invention of the smart phone Tinne is a working mother of two adorably mischievous little girls, the wife of her high school sweetheart and the owner of a black cat called Atilla.
Since she likes to cook her blog is mainly devoted to food and because she is Belgian she has an absurd sense of humour and is frequently snarky. When she is not devoting all her attention to the internet, she likes to read, write and eat chocolate. Her greatest nemesis is laundry.
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by Kirsten Doyle (Canada) | Mar 19, 2013 | Autism, Health, Hospital, Human Rights, Special Needs, World Voice
I’d like to introduce you to Alex Spourdalakis, a 14-year-old boy who lives with his mother, Dorothy. Alex is not like most 14-year-old boys. He has severe autism with cognitive impairment, and he is non-verbal. Like many kids with autism, he experiences periodic disruptions to his sleep.
A few months ago, Alex’s sleep disturbances got serious enough for him to be become agitated and aggressive. This coincided with the onset of severe gastrointestinal symptoms, like constipation alternating with diarrhea. In the middle of February, his mother took him to Gottlieb hospital in Illinois, USA. He was in excruciating pain, which manifested as aggression.
For 13 days, Alex was kept in locked restraints, only being released to use the bathroom. Bear in mind that this kid was suffering from constipation, diarrhea and vomiting. He tried to communicate when he was getting sick by screaming, but staff frequently didn’t release him in time and he would have to lie in his own vomit for several minutes at a time. He would be allowed to use the bathroom, and then he would be wiped down and returned to the restraints.
During this time, Alex was given a cocktail of drugs that were not helping, and repeated pleas by his mother for his allergies to be considered fell on deaf ears, even as his skin became raw from allergy-induced dermatitis. He was not formally admitted to the hospital, nor was a proper treatment plan devised for him.
Are you horrified yet? Brace yourself, because the story continues. (more…)

Kirsten Doyle was born in South Africa. After completing university, she drifted for a while and finally washed up in Canada in 2000. She is Mom to two boys who have reached the stage of eating everything in sight (but still remaining skinny).
Kirsten was a computer programmer for a while before migrating into I.T. project management. Eventually she tossed in the corporate life entirely in order to be a self-employed writer and editor. She is now living her best life writing about mental health and addictions, and posting videos to two YouTube channels.
When Kirsten is not wrestling with her kids or writing up a storm, she can be seen on Toronto's streets putting many miles onto her running shoes. Every year, she runs a half-marathon to benefit children with autism, inspired by her older son who lives life on the autism spectrum.
Final piece of information: Kirsten is lucky enough to be married to the funniest guy in the world.
Connect with her on Facebook, Twitter and Instagram.
Be sure to check out her YouTube channels at My Gen X Life and Word Salad With Coffee!
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by Sophie Walker (UK) | Jan 11, 2013 | Autism, Babies, Being Thankful, Childhood, Discipline, Domesticity, Education, Family, France, Girls, Hobby, Holiday, Home, Humor, Inspirational, Kids, Life Balance, Life Lesson, Me-Time, Motherhood, Parenting, Running, Sophie Walker, Special Needs, Spirituality, Working Mother, World Motherhood, Younger Children
My mum used to say to me: “Don’t wish your life away.”
Nowadays I sometimes feel as though that’s all I do. To be more specific, I’m organizing my life away.
With four kids, my job, my husband’s job, and the diaries of both our ex-partners to co-ordinate, there are often times when I look up from the calendar and realise I’ve scheduled myself right out of the current school term and into the next-but-one.
This can be particularly painful when I have to re-adapt to not being in warm late summer and that campsite in France but instead in bleak mid-winter suburbia. January is a bad month for making wishes and looking away from the here and now. “I want to be thinner/fitter/better employed/better loved by X month,” we tell ourselves, shading our eyes as we scan the horizon for that magical time when everything will be perfect.
The temptation to hurry past moments of disappointment or frustration is immense, and only human. I feel this keenly as the mother of a child with autism. School is a big issue for us, and the day-to-day of persuading my child to go and, once there, to participate, is exhausting. (more…)

Writer, mother, runner: Sophie works for an international news agency and has written about economics, politics, trade, war, diplomacy and finance from datelines as diverse as Paris, Washington, Hong Kong, Kabul, Baghdad and Islamabad. She now lives in London with her husband, two daughters and two step-sons.
Sophie's elder daughter Grace was diagnosed with Asperger Syndrome several years ago. Grace is a bright, artistic girl who nonetheless struggles to fit into a world she often finds hard to understand. Sophie and Grace have come across great kindness but more often been shocked by how little people know and understand about autism and by how difficult it is to get Grace the help she needs.
Sophie writes about Grace’s daily challenges, and those of the grueling training regimes she sets herself to run long-distance events in order to raise awareness and funds for Britain’s National Autistic Society so that Grace and children like her can blossom. Her book "Grace Under Pressure: Going The Distance as an Asperger's Mum" was published by Little, Brown (Piatkus) in 2012. Her blog is called Grace Under Pressure.
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by Lauren @Hike.Blog.Love. (USA) | Dec 18, 2012 | Autism, Family, Friendship, Kids, Parenting, Philanthropy, Social Good, Special Needs, World Motherhood, World Voice, Younger Children

The author holding her son after completing the Best Buddies 5K in August 2012.
I hold my breath as my five-year old son zooms around the playground. There are children laughing and squealing all around us. Games of tag and the sound of ring-around-the-rosey sung in unison fill the evening air.
My son continues to run in circles as if he is the only child on the playground. Another child approaches him and catches his attention. He stops. My heart starts pounding and I convince myself to wait and watch before jumping in to help him navigate this brief social encounter. It’s over as quickly as it began and he is back to zooming around the playground.
Some of the moms and other children begin to stare. Most smile politely and continue on with what they were doing and I sink back into my seat, wondering what the future will hold for my son. This is a typical day in the life of my five-year old son who is diagnosed with autism and cognitive delay. While my other typically developing five-year old son is eager to play with friends on the playground, my son with special needs is satisfied to stay within his comfort zone of isolation.
Could you imagine a world without friendship? I certainly could not.
So one day I asked myself if my son is truly happy playing alone with only brief and superficial social encounters. Doesn’t he really crave friendship like his brother? Although my son is limited verbally, a single conversation was enough to clarify that he did indeed want to make friends. As his mother, I was determined to help him do it. (more…)
Lauren is a lover of nature, an avid hiker and mama to two boys adopted from across the globe—one who happens to have autism. She is passionate about special needs adoption and the great outdoors.
You can find Lauren blogging about all of her adventures at "http://hikebloglove.com", Hike Blog Love. where she hopes to inspire others to get outdoors and explore. She fiercely believes that adventure is for all.
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by specialneedmom2 | Dec 11, 2012 | Being Thankful, Canada, Child Care, Family, Home, Husband, Kids, Life Balance, Siblings, Special Needs, Working Mother, World Interviews, World Moms Blog Writer Interview, Writing, Younger Children
Where in the world do you live? And, are you from there?
I live in Toronto, Ontario in Canada. I love living here because it is one of the most ethnically diverse cities in the world. There are countless shops and restaurants that reflect the many different people who live here. I can find food from Ethiopia, Korea, and Peru by just walking down the street or hopping on a streetcar. It is like traveling the globe without leaving your hometown.
What language(s) do you speak?
Embarrassingly, I only speak English. I’ve always wanted to learn new languages and have a smattering of French. I can ask for the washroom and count to ten, and that’s about it.
When did you first become a mother?
I first became a mother at the age of 32. My oldest son (now five years old) was born and my world changed completely. He was a jaundiced, colicky baby and I was head over heels in love with him.
I now have a three year old daughter and a one year old baby boy as well. Our home is very busy, but it’s wonderful to have the children playing together. Although it is challenging to have young children so close in age, I love (almost) every minute of it.
I was unprepared for how intense motherhood is, and I have made many changes in my life to spend more time with my children. Before children I was very career focused, and it took a couple years of trying to juggle my children’s and work schedules for me to realize it is not working for me. I now choose positions that compliment my family life. (more…)
Angela is a Special Education teacher who blogs about her super-powered special needs family. She has a 3 year old with Prader-Willi Syndrome and a 5 year old with Duchenne Muscular Dystrophy and Sensory Processing Disorder. The odds of these random genetic events occurring at the same time are astronomical. "When you add our typically developing one year old baby boy to the mix, you have a very busy household!", she explains.
Angela admits to having too many appointments, too many school problems, and being generally too busy as she tries to live life to the fullest. Please visit her family at Half Past Normal for more of their adventures! If you want to connect to chat, you can find her on Twitter @specialneedmom2
If you are interested in Special Education policies and procedures in Ontario – or just some excellent strategies and accommodations – please check out Angela's other site at Special Ed on the Bell Curve.
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by Lauren @Hike.Blog.Love. (USA) | Nov 30, 2012 | Adoption, Babies, Being Thankful, Death and Dying, Health, Human Rights, International, Poverty, Social Good, Special Needs, Tragedy, United Nations, USA, World Events, World Voice, Younger Children
December 1st is World AIDS Day. As a tribute, our World Voice writer, Lauren, submitted this post.
They cry and yearn to be held, but there are not enough arms to hold them. Many of them have watched their parents die. Some have parents who are too sick to care for them. But all of them want the same thing—to be loved and to know that they matter.
They are just like you and me, but they are the tiniest victims of the HIV/AIDS epidemic. Some, like their parents, are HIV positive. Others are considered lucky and have escaped infection. All are residing in an orphanage with a future that is uncertain.
How do I know what an AIDS orphan wants and needs? Because on a hot August Day in 2008, I stood inside an orphanage that houses orphans affected by HIV/AIDS and I held my son for the first time. So it should come as no surprise that tomorrow, on World AID Day, I will join millions of people around the globe to unite in the fight against AIDS.
World AIDS Day aims to educate, inform and empower people to join the effort to bring an end to the AIDS epidemic.According to UNAIDS, more than 34 million people are currently living with HIV/AIDS and a staggering 3.3 million of them are under the age of 15. The HIV/AIDS epidemic claims the lives of 1.7 people each year. With 2.5 million new infections occurring annually, the epidemic is far from over.
But there is hope. (more…)
Lauren is a lover of nature, an avid hiker and mama to two boys adopted from across the globe—one who happens to have autism. She is passionate about special needs adoption and the great outdoors.
You can find Lauren blogging about all of her adventures at "http://hikebloglove.com", Hike Blog Love. where she hopes to inspire others to get outdoors and explore. She fiercely believes that adventure is for all.
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